Tonight, at about 7pm, the phone rang.
I answered it as I was looking at the caller id and thinking this is probably a telemarketer…
Computerized voice: You will be connected to your caller now
Operator Voice: all of our representatives are assisting other customers right now. Please continue to hold…
I should know better than to expect scientifically accurate journalism from any mainstream news outlet. But somehow it always pisses me off more when the NY Times blows it. I don’t know why I expect better from them – paper of record? – but I do. Whenever they publish a breathless article about the cure being right around the corner at least fifteen family members forward it to me, much to my irritation.
I cringed when their front page article on IVF and the octuplets referred to “implanting” embryos 11 times (!) even after quoting the ASRM guidelines that refer to transferring embryos. For those of you scratching your heads, in IVF, embryos are transferred to the woman’s uterus, where they subsequently do or do not implant. Implantation is the first move towards pregnancy – if they don’t implant, they aren’t doing anything. If reproductive endocrinologists could actually implant embryos, the world of IVF would be very very different.
But I really wanted to cancel my subscription after reading this gem of an article about young people without health insurance.
When Robert Voris last had health insurance, in 2007, he stockpiled insulin pumps, which are inserted under the skin to constantly monitor blood-sugar levels and administer the drug accordingly. He said the tubing for the pump costs $900 a month, so lately he has instead been injecting insulin with a syringe. But Mr. Voris, 27, a journalism student at the City University of New York who works at a restaurant in Park Slope, Brooklyn, is constantly worried about diabetes-induced seizures like the one that sent him to the hospital last summer. (Because it happened at work, his boss covered the ambulance and other bills.)
He “stockpiled insulin pumps”? Which “are inserted under the skin to constantly monitor blood-sugar levels and administer the drug accordingly?”
I understand that diabetes wasn’t the focus of the article, but could you please, please, do some rudimentary fact-checking before you publish shite? Grrrrrr.
So, I’ve had the CGMS system with my Minimed 722 for about two months now, and while I really like being able to “check-in” without stopping to test – especially useful when you are frequently find yourself starting to test and being interrupted by someone (ahem, P’ito) who has discovered that the Cheerios box in the pantry can be emptied all over the floor… and then you come back – did I test? is that strip new or old? if I tested, what was my blood sugar? – there are some things about that drive me absolutely batshit. I hope Minimed reads blogs – and if you’re using the paradigm platform, please feel free to chime in with hacks, whines, etc.
Alarms: First off – need a volume setting. I am a deep sleeper, and I have never been woken up by an alarm. Ideally, this would be programmable by time of day, so that your pump did not go off like an air-raid siren in the middle of a meeting – but did wail to wake the dead in the middle of the night.
This would be unnecessary if the alarms actually woke me, but once the condition that caused an alarm has gone away, the alarm should too. I don’t need to know that I was high three hours ago, when my blood sugar is now 102.
I can’t remember when I put the damn thing in. So it just told me sensor end, and I’m wondering… did I already “start” this sensor for a second time? Or will this be “start” #2? Why not just get them approved for 6 days (or even more logical, a week) and put an end to this sham of re-starting the sensor after three days.
Meter communication. I LOVED having my meter tell my pump what my blood sugar was. It meant that I could test, go about my business, and two ten twenty minutes later look down at my pump to see what my blood sugar was. If you have to, have an “update sensor?” question for blood sugars sent from the meter, but please please, make this function work with the CGMS.
Button functionality. Once you hit the esc button to see your graph, you cannot turn on the back light on the pump. I cannot tell you how many times I have cursed as I esc esc esc esc to get back to the main screen.
Senserter. It is miserable enough using this thing – does it need to require enough force to push the button that I break out in a sweat every time I do it?
A friend of mine is doing her masters thesis in social work. She is looking for participants to take part in an online survey that will take about 30 minutes. Here’s what she has to say:
I would like to ask for your help in finding participants for my Master of Social Work thesis research on anonymous donor preferences of non-genetic mothers. I am excited to have this opportunity to give voice to the experiences of women starting families in this way.
Participants in my research must meet the following criteria:
(a) self identify as a woman partnered with another woman,
(b) neither woman in the partnership has previous children (i.e., through birth, foster-care, adoption, or step-parenting),
(c) participants have selected an anonymous [id release okay] sperm donor in the past 36 months, and
(d) participants are not be the genetic (i.e. egg/ovum) parent.
The research consists of answering an anonymous online survey which takes about 30 minutes. The survey can be found at http://www.surveymonkey.com/s.aspx?sm=WeKJ3vzrhjjQzXxpNd9Szg_3d_3d
I encourage you to forward this information to any friends, family members, and other professional or personal contacts who might be eligible to participate.
Please feel free to contact me with any questions about this research.
Thank you in advance for your time.
[Note – if you click through to the survey, you will see her name and contact info – I didn’t want to make the life of a spammer tooooo easy!]